May 23, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
In 2020, I was eligible for a new power wheelchair. I worked tirelessly to make the medical necessity argument for a power seat elevator. My private insurance carrier denied me. I spent months appealing only to receive the dreaded letter titled “Final Adverse...
May 16, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
If you are a power wheelchair user then you are probably cringing at the title of this article as there is a 50% chance if you fly this has happened to you. If you are not a wheelchair user, think about this: How would you feel if the airline decided to take a...
May 2, 2023 | Advocacy, Lessons Learned, Misc, Uncategorized
I spent my 40th birthday with 5 incredible women in Costa Rica with Wheel the World global travel company and Il Viaggio local Costa Rica accessible travel company. It was bananas. I’m sure many of you have seen many of my posts. When I decided to...
Apr 29, 2023 | Advocacy, Lessons Learned, Misc, Spinal Cord Injury, Uncategorized
Something happened to me in Costa Rica. For the first time in 13 years since breaking my neck in 2010 I took a vacation for my 40th birthday with 6 incredible women who helped make this trip possible. I went on an adventure trip as I had become so...
Apr 6, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
When most people work with me, professionally or in my advocacy life, they usually see a quadriplegic who is well dressed, makeup on, hair straightened, perfectly sitting upright in my wheelchair. I work very hard and very long hours between my pro bono advocacy life...
Mar 27, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
It’s a really interesting question. One would think that paralysis alone is enough make life challenging, but, ironically, not walking is the least of my challenges. I’m not quite sure if I’m genetically wired like this, but I always do find the positive side of...