Sep 27, 2023 | Advocacy, Lessons Learned, Medical, Misc, Professional, Uncategorized
Traveling is challenging enough as a quadriplegic with respect to bed heights, doorway entrances, accessible showers, the list goes on. I always travel with a caregiver. I actually have less needs than a lot of my friends because I pretty much stick my head in the...
Sep 12, 2023 | Advocacy, Before the Accident, Lessons Learned, Medical, Professional, Spinal Cord Injury, Uncategorized
Many of you may not know this, but I spent the first 7 years after my accident in and out of hospitals with multiple surgeries including multiple life-threatening pressure sores, spinal cysts, pulmonary embolism’s, hyperthyroidism, osteoporosis, cervical cancer,...
Aug 17, 2023 | Advocacy, Funnies, Lessons Learned, Medical, Spinal Cord Injury, Uncategorized
My life. It’s complex. It can be challenging and downright overwhelming at times. I find humor in places that most likely would not – even when I’m tied down to a hospital bed in China after major spinal surgery in the ICU. The other day I was...
Jul 21, 2023 | Advocacy, Funnies, Lessons Learned, Medical, Misc, Professional, Spinal Cord Injury, Uncategorized
As we approach the end of Disability Pride Awareness Month this July, I am reminded of the fragility of living my life as a quadriplegic and all that I’ve been through. I’ve actually been thinking quite a lot about certain conversations involving tremendous giggling...
Jul 20, 2023 | Advocacy, Before the Accident, Lessons Learned, Medical, Spinal Cord Injury, Uncategorized
A huge thank you to the American Medical Rehabilitation Providers Association (AMRPA) for writing such a beautiful article on so many challenges many of us wheelchair users continually strive to fight for health equity in our community! Excerpt: “Seat Elevation:...
Jul 10, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
Check out the latest episode of Wheelchair Nerds as we discuss the Centers for Medicare & Medicaid Services’ decision on coverage for seat elevation. There is a lot to unpack on the approved criteria and next steps, and Ali Ingersoll and Jim Stephenson join...
