May 30, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
Flying on a Commercial Airline as a C6 quadriplegic paralyzed from the chest down — I wish I could sugarcoat this for this for wheelchair users out there who have significant mobility impairments, but I struggle to. Traveling in a wheelchair is no joke. It takes...
May 25, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
I have the distinct pleasure to be part of this incredible global group of disability advocates focusing on disability inclusion issues. We hosted the most amazing, inclusive, and engaging webinar on different perspectives on how health insurance affects individuals...
May 23, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
In 2020, I was eligible for a new power wheelchair. I worked tirelessly to make the medical necessity argument for a power seat elevator. My private insurance carrier denied me. I spent months appealing only to receive the dreaded letter titled “Final Adverse...
May 16, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
If you are a power wheelchair user then you are probably cringing at the title of this article as there is a 50% chance if you fly this has happened to you. If you are not a wheelchair user, think about this: How would you feel if the airline decided to take a...
Apr 6, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
When most people work with me, professionally or in my advocacy life, they usually see a quadriplegic who is well dressed, makeup on, hair straightened, perfectly sitting upright in my wheelchair. I work very hard and very long hours between my pro bono advocacy life...
Mar 27, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
It’s a really interesting question. One would think that paralysis alone is enough make life challenging, but, ironically, not walking is the least of my challenges. I’m not quite sure if I’m genetically wired like this, but I always do find the positive side of...
