Sep 5, 2022 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
A dear friend of mine writes for many magazines and wrote a beautiful piece over the last several months on my life, but what I think was very different as compared to many profile pieces was a night out on the town with me. I fitted Billy up for a power wheelchair...
Aug 27, 2022 | Advocacy, Lessons Learned, Spinal Cord Injury, Uncategorized
I am humbled and extremely proud to have parted with National Nonprofit SPINALpedia. I’ve spent the last year writing a detailed guide to helping people navigate the health insurance appeals process with tips and tricks. Navigating the health insurance approval...
Jul 26, 2022 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
I never critically stopped to ponder why being a great communicator can also lead to a very lonely existence at times. Since I was a child, I have always been “perky” as they say and never had a problem in social settings. I love people, communicating with...
Jul 8, 2022 | Advocacy, Family, Lessons Learned, Misc, Sex + Dating, Spinal Cord Injury, Uncategorized
“SPENDING A YEAR IN BED: New YouTube Video Out — Quirky Quad “Shower Talk with Ali” — UNCENSORED! I bet you don’t know a lot of people that have spent a year in bed. Why would you? This is definitely not normal. I’ve written about it...
May 11, 2022 | Advocacy, Family, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
This is hard to write – perhaps harder to deal with than chronic debilitating nerve pain, which I suffer from daily. When you are physically disabled and require 24/7 help to take care of all of your daily needs it requires a village of caregivers, family, friends,...