May 25, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
I have the distinct pleasure to be part of this incredible global group of disability advocates focusing on disability inclusion issues. We hosted the most amazing, inclusive, and engaging webinar on different perspectives on how health insurance affects individuals...
May 23, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
In 2020, I was eligible for a new power wheelchair. I worked tirelessly to make the medical necessity argument for a power seat elevator. My private insurance carrier denied me. I spent months appealing only to receive the dreaded letter titled “Final Adverse...
Mar 27, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
It’s a really interesting question. One would think that paralysis alone is enough make life challenging, but, ironically, not walking is the least of my challenges. I’m not quite sure if I’m genetically wired like this, but I always do find the positive side of...
Dec 31, 2022 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
My father raised me with so many incredible quotes. Over the course of 2022 and throughout all of my wonderful successes and failures – this one in particular continues to drive me on a daily basis: “Luck is the Residue of Design” – English Poet John...
