Sep 7, 2025 | Advocacy, Lessons Learned, Medical, Professional, Uncategorized
📬 The most nerve-racking piece of mail I’ve opened in years: a denial letter from my health insurance provider. Not just a denial for a new wheelchair — a denial of continuity of care. A denial of common sense. WHAT I ASKED FOR That my long-time wheelchair provider —...
Nov 15, 2024 | Advocacy, Lessons Learned, Misc, Professional, Spinal Cord Injury, Uncategorized
For many that know me, I simply love to write. I think in writing. I wake up in the middle of the night and take notes. Now, I appreciate this is probably not brilliant for my sleep cycles, but it’s the way I’m wired.2024, wow, it has been a year on the go...
Jul 21, 2023 | Advocacy, Funnies, Lessons Learned, Medical, Misc, Professional, Spinal Cord Injury, Uncategorized
As we approach the end of Disability Pride Awareness Month this July, I am reminded of the fragility of living my life as a quadriplegic and all that I’ve been through. I’ve actually been thinking quite a lot about certain conversations involving tremendous giggling...
Jul 20, 2023 | Advocacy, Before the Accident, Lessons Learned, Medical, Spinal Cord Injury, Uncategorized
A huge thank you to the American Medical Rehabilitation Providers Association (AMRPA) for writing such a beautiful article on so many challenges many of us wheelchair users continually strive to fight for health equity in our community! Excerpt: “Seat Elevation:...
Jan 25, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury
It starts with Awareness and Determination. On the front of my pro bono advocacy life with respect to health insurance to advance disability inclusion for all … I am honored to partner with VGM and Associates, the nation’s largest and most comprehensive...
