Jun 17, 2023 | Advocacy, Funnies, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
Whenever we experience trauma or go through an extremely challenging time in our lives we often remember the bad. We remember the ugly. We don’t remember little moments of hope because our brains are wired generally catastrophize experiences. Just think about...
Jun 12, 2023 | Advocacy, Lessons Learned, Medical, Spinal Cord Injury, Uncategorized
It was such a tremendous honor to host a webinar with a dear friend Karen Roy, Numotion Ambasador, Licensed Clinical Social Worker, fierce advocate, and Ms. Wheelchair America 2019. With Help Hope Live organizing this amazing event, we both spoke about navigating the...
May 25, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
I have the distinct pleasure to be part of this incredible global group of disability advocates focusing on disability inclusion issues. We hosted the most amazing, inclusive, and engaging webinar on different perspectives on how health insurance affects individuals...
May 23, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
In 2020, I was eligible for a new power wheelchair. I worked tirelessly to make the medical necessity argument for a power seat elevator. My private insurance carrier denied me. I spent months appealing only to receive the dreaded letter titled “Final Adverse...
Apr 6, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
When most people work with me, professionally or in my advocacy life, they usually see a quadriplegic who is well dressed, makeup on, hair straightened, perfectly sitting upright in my wheelchair. I work very hard and very long hours between my pro bono advocacy life...
