May 25, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
I have the distinct pleasure to be part of this incredible global group of disability advocates focusing on disability inclusion issues. We hosted the most amazing, inclusive, and engaging webinar on different perspectives on how health insurance affects individuals...
May 23, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
In 2020, I was eligible for a new power wheelchair. I worked tirelessly to make the medical necessity argument for a power seat elevator. My private insurance carrier denied me. I spent months appealing only to receive the dreaded letter titled “Final Adverse...
Apr 6, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
When most people work with me, professionally or in my advocacy life, they usually see a quadriplegic who is well dressed, makeup on, hair straightened, perfectly sitting upright in my wheelchair. I work very hard and very long hours between my pro bono advocacy life...
Mar 27, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
It’s a really interesting question. One would think that paralysis alone is enough make life challenging, but, ironically, not walking is the least of my challenges. I’m not quite sure if I’m genetically wired like this, but I always do find the positive side of...
Feb 21, 2023 | Advocacy, Medical, Spinal Cord Injury, Uncategorized
February 15, 2023 UPDATE: Public Comments Needed Again to Lock in Decision: www.rise4Access.org by MARCH 17, 2023 CMS released its long-awaited proposed decision to offer Medicare coverage for seat elevation systems in power wheelchairs, for the first time ever. This...
