Jul 11, 2022 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
Really honored to have worked with Help, Hope, Live, a non-profit national organization dedicated to raising money for medical bills and expenses through crowdfunding. This is a topic that is certainly not new, nor unfamiliar to many of us with disabilities....
May 11, 2022 | Advocacy, Family, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
This is hard to write – perhaps harder to deal with than chronic debilitating nerve pain, which I suffer from daily. When you are physically disabled and require 24/7 help to take care of all of your daily needs it requires a village of caregivers, family, friends,...
Apr 27, 2022 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
Pain. Chronic pain. It’s no joke. It’s debilitating. It can lead to death. It can be physically and psychologically crushing to your soul. Living with physical paralysis, for me, pales in comparison to pain. If...
Apr 4, 2022 | Advocacy, Before the Accident, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
Many of you know I’ve been fighting for an adaptive rowing machine called the Vitaglide for some time now with Blue Cross and Blue Shield. I hit a dead end working directly with BCBS policy directors and I’m now introducing legislation with NC State...
Mar 17, 2022 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
You work so hard for so long on a specific project only to have it practically blow up in your face. I’ve been working with Blue Cross and Blue Shield policy directors for the last six months and I recently received beautiful “BS” letter as they say...
Mar 3, 2022 | Advocacy, Funnies, Lessons Learned, Medical, Misc, Sex + Dating, Spinal Cord Injury, Uncategorized
Very cool podcast I was part of that offers a very unique perspective on how many of us with disabilities approach the conversations with our caregivers when we want to be intimate with a new person in our life, and how we handle those conversations. Probably not...
