Jun 23, 2022 | Advocacy, Lessons Learned, Misc, Spinal Cord Injury, Uncategorized
This is a super proud advocacy moment for me! Many of you that know me, know that I spend much of my time battling health insurance companies and helping individuals get the medically necessary durable medical equipment they need to not only survive in life but to...
May 15, 2022 | Advocacy, Lessons Learned, Misc, Spinal Cord Injury, Uncategorized
I am consulting with a beautiful organization called Open Inclusion where I am the Lead in the United States. Open is an organization run for and by people with disabilities where we work with large brands to make products and services more accessible through...
May 11, 2022 | Advocacy, Family, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
This is hard to write – perhaps harder to deal with than chronic debilitating nerve pain, which I suffer from daily. When you are physically disabled and require 24/7 help to take care of all of your daily needs it requires a village of caregivers, family, friends,...
Apr 27, 2022 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
Pain. Chronic pain. It’s no joke. It’s debilitating. It can lead to death. It can be physically and psychologically crushing to your soul. Living with physical paralysis, for me, pales in comparison to pain. If...
Apr 20, 2022 | Advocacy, Lessons Learned, Misc, Sex + Dating, Spinal Cord Injury, Uncategorized
It was pretty awesome to be a guest last week Hosted by BACKBONES and sponsored by the REEVE FOUNDATION with a good friend Chelsea McDonald. We really dove into some super personal disability topics that are just not normalized in mainstream society! It was an honest,...
Apr 4, 2022 | Advocacy, Before the Accident, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
Many of you know I’ve been fighting for an adaptive rowing machine called the Vitaglide for some time now with Blue Cross and Blue Shield. I hit a dead end working directly with BCBS policy directors and I’m now introducing legislation with NC State...
