Apr 6, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
When most people work with me, professionally or in my advocacy life, they usually see a quadriplegic who is well dressed, makeup on, hair straightened, perfectly sitting upright in my wheelchair. I work very hard and very long hours between my pro bono advocacy life...
Mar 27, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
It’s a really interesting question. One would think that paralysis alone is enough make life challenging, but, ironically, not walking is the least of my challenges. I’m not quite sure if I’m genetically wired like this, but I always do find the positive side of...
Feb 21, 2023 | Advocacy, Medical, Spinal Cord Injury, Uncategorized
February 15, 2023 UPDATE: Public Comments Needed Again to Lock in Decision: www.rise4Access.org by MARCH 17, 2023 CMS released its long-awaited proposed decision to offer Medicare coverage for seat elevation systems in power wheelchairs, for the first time ever. This...
Feb 14, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
I have been on a story collecting mission. What’s really behind a story? What makes a story successful, thought-provoking, empathetic, and above all passionate to move people in a way that they will not soon forget you! One of my dreams is to become a Tedx/Ted...
Jan 30, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury, Uncategorized
I had the distinct pleasure to present to the Leadership College at the North Carolina Medical Association filled with doctors, legislators, and PA’s. I spent an hour discussing my personal story, but more than that, talking about the need for disability...
Jan 25, 2023 | Advocacy, Lessons Learned, Medical, Misc, Spinal Cord Injury
It starts with Awareness and Determination. On the front of my pro bono advocacy life with respect to health insurance to advance disability inclusion for all … I am honored to partner with VGM and Associates, the nation’s largest and most comprehensive...