Dec 5, 2025 | Advocacy, Lessons Learned, Medical, Professional, Uncategorized
When Purpose, Humor, Medicine, and Applied Neuroscience All Converge There’s a very distinct sensation that hits you when you roll onto a stage and 3,000 people go silent. Part electricity, part adrenaline, part “Please for the love of all things holy, don’t let my...
Oct 21, 2025 | Advocacy, Lessons Learned, Medical, Misc, Professional
CMS says it’s cutting fraud. Patients like me may pay the price with our lives Fifteen years ago, I almost died because of the wrong catheter. I was hospitalized with sepsis after being forced to use products that didn’t meet my medical needs. It took years to find...
Sep 7, 2025 | Advocacy, Lessons Learned, Medical, Professional, Uncategorized
📬 The most nerve-racking piece of mail I’ve opened in years: a denial letter from my health insurance provider. Not just a denial for a new wheelchair — a denial of continuity of care. A denial of common sense. WHAT I ASKED FOR That my long-time wheelchair provider —...
Aug 21, 2025 | Advocacy, Before the Accident, Family, Lessons Learned, Medical, Misc, Professional, Spinal Cord Injury, Uncategorized
I don’t believe my accident happened for a reason. I believe bad things happen to great people every second of every day. What I do believe is this: the way you move forward when life feels impossible is what defines you. Today I’m sitting quietly, reflecting on...
May 28, 2025 | Advocacy, Lessons Learned, Medical, Professional, Spinal Cord Injury
Let’s face it: your brain is dramatic. Not theater-kid-in-high-school dramatic. More like toddler-who-dropped-their-Fruit-Roll-Up-in-a-sandbox dramatic. Every day, your decisions are being pulled in a three-way battle between: 🧠 The impulsive part that wants dopamine...
May 9, 2025 | Advocacy, Lessons Learned, Medical, Misc, Professional
(Could this be you? Or someone you love?) I wish I could say this is one of my usual dark humor posts. It’s not. It is, however, one of the most necessary things I’ve written in a while—for all of us, as human beings navigating a system that often forgets the human...
