Dec 5, 2025 | Advocacy, Lessons Learned, Medical, Professional, Uncategorized
When Purpose, Humor, Medicine, and Applied Neuroscience All Converge There’s a very distinct sensation that hits you when you roll onto a stage and 3,000 people go silent. Part electricity, part adrenaline, part “Please for the love of all things holy, don’t let my...
Oct 21, 2025 | Advocacy, Lessons Learned, Medical, Misc, Professional
CMS says it’s cutting fraud. Patients like me may pay the price with our lives Fifteen years ago, I almost died because of the wrong catheter. I was hospitalized with sepsis after being forced to use products that didn’t meet my medical needs. It took years to find...
Oct 13, 2025 | Advocacy, Lessons Learned, Professional, Spinal Cord Injury, Uncategorized
(And how to do your best to NOT BREAK YOUR LEGS) Earlier this year, U.S. Department of Transportation (DOT) passed a rule to protect wheelchair users in air travel — one of the biggest steps forward we’ve seen in years. But fast-forward to now… major airlines are...
Sep 7, 2025 | Advocacy, Lessons Learned, Medical, Professional, Uncategorized
📬 The most nerve-racking piece of mail I’ve opened in years: a denial letter from my health insurance provider. Not just a denial for a new wheelchair — a denial of continuity of care. A denial of common sense. WHAT I ASKED FOR That my long-time wheelchair provider —...
Sep 1, 2025 | Advocacy, Lessons Learned, Professional, Sex + Dating, Spinal Cord Injury, Uncategorized
(200 PEOPLE. 1 BOOK. 1 WILDLY UNFORGETTABLE NIGHT.)I’m rarely speechless (and let’s be honest, that never happens) — but my book launch for Unbreakable(ish): I Wasn’t Built for Boring hosted & donated by the North Carolina Museum of Art left me totally blown...
Aug 21, 2025 | Advocacy, Before the Accident, Family, Lessons Learned, Medical, Misc, Professional, Spinal Cord Injury, Uncategorized
I don’t believe my accident happened for a reason. I believe bad things happen to great people every second of every day. What I do believe is this: the way you move forward when life feels impossible is what defines you. Today I’m sitting quietly, reflecting on...
